Michiel Vandeweert, a Belgian social media creator who shared his life with progeria, a rare genetic disorder that causes rapid aging, has died at the age of 28. His death was confirmed by family members and tributes have poured in from across the globe.
Vandeweert built a combined following of more than 90,000 people on Instagram, YouTube, and Twitch, where he blended gaming content with candid glimpses into his daily life. He was open about the challenges of living with progeria, but also celebrated the joys of life, earning him a loyal community of supporters.
At age 15, he published a memoir titled “Ik Ben Michiel” (“I Am Michael”), detailing how he confronted a shortened life expectancy. His story reached a wider audience this year through the documentary “How To Be Alive: Amber and Michiel,” which followed him and his 20-year-old sister, Amber, who also has progeria. A film crew spent months documenting their daily lives, offering an intimate look at their bond and resilience.
Vandeweert was also a devoted supporter of Belgian soccer club KRC Genk, which honored him on social media Tuesday. The club described him as a positive and inspirational figure who was a loyal Genk supporter and someone who embraced life. His connection to the club is expected to play a meaningful role in his final farewell.
His funeral is scheduled to take place at KRC Genk’s stadium next week and is open to all who wish to pay their respects. Erik Gerits, KRC Genk’s Head of Community, said the ceremony will mark the first time the club has held a funeral directly on the field. Vandeweert leaves behind his family, friends, and a community of supporters who followed his journey.
