Zac Brown Band’s Coy Hopkins Shares Battle with ALS and Family Love

Cincinnati, Ohio – Zac Brown Band‘s Coy Hopkins, recently diagnosed with amyotrophic lateral sclerosis (ALS), continues to perform and share his story of resilience. The 54-year-old musician spoke about his health challenges during a video call from a dressing room before a concert in Cincinnati.

Since his diagnosis, Hopkins has faced difficulties with his voice and balance, often using a walking stick for support. However, he maintains a positive outlook, stating, “Compared to a lot of people, I’m doing great.” He demonstrates his determination by wiggling his fingers, affirming that they still function.

Hopkins has played various instruments for the band, including guitar and banjo, adapting as needed to fulfill his role. “I’m hoping to be out there as long as I can. Sometimes I feel like performing gives me more inspiration to keep going,” he said.

Diagnosed with a slowly progressing form of ALS affecting the brain, Hopkins is aware of his diagnosis and its implications. “Something could happen tomorrow and I could be paralyzed,” he expressed. He noted that if he reaches five years post-diagnosis, doctors may indicate a lower progression rate, which he views with gratitude.

The news in December 2021 was a turning point for Hopkins and his family. He struggled with how to communicate his diagnosis to his daughters, Sarah Grace, and twins Lily Faith and Margaret Hope, now 16 and 13. “I kept wondering what I could possibly say to my kids about this,” he recalled, highlighting the emotional burden he faced.

In response to his feelings, Hopkins wrote a song titled “I Love You Forever,” a heartfelt tribute to his loved ones. Released in May, the song offers poignant lyrics, expressing his hopes for his daughters’ futures.

To further support ALS research, he founded the three years ago, which has raised over $4 million for research projects. “We have to fund as many research projects as possible because we don’t know which one is going to hit,” he explained while emphasizing the ongoing need for a cure.

Despite his condition, Hopkins strives to maintain a normal life. He enjoyed concerts last year with family and friends and stays actively involved in the band and charitable endeavors. “I do need to get more rest,” he admitted, “but I don’t want to miss out on anything.”